Orphan Drugs: Building the Regulatory Framework in the Czech…
A cross-industry push for better and broader access to innovative treatments is underway in the Czech Republic. Ripe for reform is the country’s…
Tagged with Orphan Drugs
David López García – Country Manager, BioMarin Mexico
David López García, Mexico country manager of global rare genetic therapy player Biomarin, outlines the challenging situation around patient access…
Tamás Demeter – Country Manager, AOP Orphan, Hungary
Tamás Demeter, Country Manager for AOP Orphan shares his insights on the footprint of the company in Hungary, the areas of therapeutic need that AOP…
Jan Krejčí – Country Manager, Ewopharma, Czech Republic
Ewopharma’s Jan Krejčí, Country Manager for the Czech affiliate for the last eight years, shares the achievements of the company in its two main…
Myriam Hakim – General Manager GCC, Kyowa Kirin
Myriam Hakim, the recently appointed GM for Japanese specialty pharma firm Kyowa Kirin’s UAE affiliate, discusses the strategic significance of the…
UAE: A World Leader for Early Access to Innovation
The UAE ranks as a world leader in rapid drug approvals with its fast-track registration system that accelerates the process and eliminates long…
A New Paradigm for Rare Diseases in China
Eric Bouteiller outlines the paradigm shift occurring in China around rare diseases and how the country has the potential to lead the global…
Orphan Drug Accessibility & Social Medical Coverage in China
Kevin Rufang Huang is the president and founder of the Chinese Organization for Rare Disorders (CORD). A rare disease patient himself, he is…
5 Key Trends in Orphan Drugs & Rare Diseases
Long regarded as a neglected backwater within the drug discovery landscape and the preserve of only a handful of niche players, the rare disease space…
5 Rare Diseases You Should Know
The 28th February 2019, marks the twelfth international Rare Disease Day. On and around this day hundreds of patient organisations from countries and…
South Korea Gives the Green Light to Imports of Medical Cannabis
This week the Korean Ministry of Food and Drug Safety announced that as of 12th March 2019 a revised narcotics bill will go into effect that will…
Top 10 Orphan Drugs in the USA
The Top 10 bestselling orphan drugs in the USA in 2017. Celgene’s Revlimid (generic name lenolidamide) leads the way with sales of USD 5.4…
