PharmaBoardroom’s Top Patient Group Insights 2021
PharmaBoardroom has spoken to leaders from several important global patient advocacy organisations in 2021 who shared their concerns on crucial global…
Tagged with Patients
Claire Saxton – Vice President, Patient Experience &…
Claire Saxton and Lauren Kriegel of Cancer Support Community, the largest professionally led non-profit network of cancer support worldwide, discuss…
Lorna Warwick – CEO, Lymphoma Coalition
Lorna Warwick is CEO of the Lymphoma Coalition, a worldwide network of patient groups with a full or partial focus on providing support to patients…
Natacha Bolaños – Global Alliances Manager & Regional…
The Lymphoma Coalition’s Natacha Bolaños outlines the fundamentals of the lymphoma patient experience today, the growing number of innovative new…
Guillermo Chantada – Incoming President Elect,…
Dr Guillermo Chantada, incoming president-elect of the International Society of Paediatric Oncology (SIOP) highlights the progress of paediatric…
Kathy Pritchard-Jones – President, International Society of…
Kathy Pritchard-Jones, Professor of Paediatric Oncology at University College London (UCL) and President of the International Society of Paediatric…
Inserting the Patient Voice: Ethical Challenges in the Use of…
Patient advocate and regular PharmaBoardroom contributor Monica Weldon examines how healthcare’s data revolution has thus far largely ignored the…
Zack Pemberton-Whiteley – CEO, Leukaemia Care
Zack Pemberton-Whiteley, CEO of UK-based blood cancer charity Leukaemia Care, discusses the importance of patient and patient organizations’…
João de Bragança & Nicole Scobie, Childhood Cancer…
Cancer is one of the most frightening words in any language but is especially heart-wrenching when it comes to children. João de Bragança, President…
USA: Importance of the Patient Voice in Drug Development:…
Writing in the May edition of DIA’s Global Forum magazine, Erica Lyons, Sarrit Kovacs, Matthew Kowalik, and Jessica Lee from the Division of…
Embryonic Gene Editing: How Far is Too Far to Find a Treatment…
Rare disease patient advocate Monica Weldon outlines some of the ethical conundrums around embryonic gene editing. With CRISPR technology again in the…
Peter L. Saltonstall – President & CEO, National…
Ahead of the 2020 US National Organization for Rare Disorders (NORD)’s Rare Diseases and Orphan Products Breakthrough Summit, NORD president and CEO…
