David Peña Castillo
David Peña Castillo is the President and founder of The Mexican Federation of Rare Diseases (FEMEXER) -- a non-governmental alliance of patient organizations led by patients representing 64 organizations of patients with rare diseases in Mexico, covering more than 40 conditions. "I am the father of two wonderful people with Gaucher disease. I'm driven by passion, courage and determination to help them first, and then others finding their treatment thru the labyrinth of the Mexican health system. FEMEXER and Proyecto Pide un Deseo México are two important efforts in this direction, and I'm the proud leader of that."
David Peña Castillo is the President and founder of The Mexican Federation of Rare Diseases (FEMEXER) -- a non-governmental alliance of patient organizations led by patients representing 64 organizations of patients with rare diseases in Mexico, covering more than 40 conditions.
"I am the father of two wonderful people with Gaucher disease. I'm driven by passion, courage and determination to help them first, and then others finding their treatment thru the labyrinth of the Mexican health system. FEMEXER and Proyecto Pide un Deseo México are two important efforts in this direction, and I'm the proud leader of that."
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"I am the father of two wonderful people with Gaucher disease. I'm driven by passion, courage and determination to help them first, and then others finding their treatment thru the labyrinth of the Mexican health system. FEMEXER and Proyecto Pide un Deseo México are two important efforts in this direction, and I'm the proud leader of that."
Articles: David Peña Castillo
How do we Encourage Patients to Continue Taking their Medicines?
Mexico / David Peña Castillo, president and founder of the Mexican Federation of Rare Diseases (FEMEXER), addresses the problem of patients deserting therapies. In Mexico, approximately 15 percent of patients treated with therapies for rare diseases, dismiss the concept of adherence to treatments. In Latin American Countries such as Mexico, keeping patients in adherence to treatments…
Leading a patients alliance
Mexico / David Peña Castillo is the President and founder of The Mexican Federation of Rare Diseases (FEMEXER). Here he discusses what makes a patients association. When we find a way to communicate the complexities of rare diseases simply, we can avoid isolating anyone and the potential to uncover important information is accelerated. Like Horton from Dr…
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